Category Archives: Faith Family Football

Love goes on

A couple weekends ago, we made a trip to see our family in North Dakota.  Sadly, the reason for our trip to my sweetie’s childhood hometown was to say good-bye to our former brother-in-law.  He had always been good to us and we wanted to be there to support the rest of our family.  Since Reed is buried there, we knew we would go and tend to his grave.  I would rather be spending money on some great adventure for what would be his college years, but instead we make sure that he has flowers and mementos to commemorate his life.

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Neither reason for our road trip are ones that make me just giddy to get out of bed. Seeing our family – yes, dealing with another life gone – never. Tragic endings are rough on families.  Of this, we are living proof.  The journey is hard when “so long for now” comes much, MUCH sooner than we had expected.  These thoughts swirled through my head with each wheel turn of the more than four hundred mile journey.

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On the day of the service, I watched a morning news show where an interview with a mother-daughter author team caught my attention.  The daughter shared about how her mother’s resilience in the face of difficult circumstances really shaped much of her life. She summed this up in one sentence and as an educator, my interest piqued, wanting to paint her words on all the walls in school.

“Failure is an event, not a definition.” ~Francesca Serritella

Trying to keep my emotions in check throughout the day, this thought continually swirled around in my head as we plunged forward through the tough stuff. I could numb my pain thinking of these words and how I might apply them to the doctorate courses I am taking. Then I thought, “Wait a minute!  Teaching children to be resilient and persist when the going gets tough applies to when tragedy hits a family too!”

“Tragedy is an event, not a definition.” ~Kandy Noles Stevens

This has been my driving force since the day we woke up after the bus crash.  This horrible, terrible event would not define our family.  We weren’t sure how life would go on, but one thing was certain, love would. Our love for each other, including Reed, would endure and faith would carry us through all the tough stuff.  Life wouldn’t always be pretty, but we weren’t going to allow sadness to be our forever garment. And through it all, God would be with us.  That knowledge alone was more than enough.

When one defines tragedy as a moment in time, it becomes second nature to see that like the refiner’s fire life’s hardships shape and prioritize much of life.  But the parts often unseen in the struggle are the unabashed moments of praise are wrapped up in unexpected glimpses of joy even when we are mired in the muck.

While I was understandably sad about the circumstances of our weekend, God still has joy in his repertoire.  The first of which arrived in the form of a text from a young man, whom we have adopted through an “adopt a college student” program through our church.  The e-mail was to tell us that our now “adopted granddaughter” had arrived.

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The next moment of joy came when our nephew and his family stopped over and I finally got to hold our great nephew who has Reed as one of his middle names.  Humbled, thankful and awed is the best way to describe how it felt to hold a little boy who has carries forward my sweet son’s name.  A blessing greater than I had ever dreamed possible!

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In both cases, the joy and the heavenly praise ascended were preceded by God’s unfathomable love for us.  The same love that picked us when we weren’t sure if we would be able to do this hideous thing called grief.  Every time the pain was overwhelming there would be some small God sighting that would remind us how incredibly loved we truly are.  Even though Reed and Scotty were no longer with us, our love for them wouldn’t end.  So it was on the long drive home from our not long enough visit.

My sweetie remembered a local casino always has an amazing fireworks show annually on July 3.  Although a little bit out of our way, he rerouted our path home to take in the celebration.  Part of his reasoning was to remember and honor, Scotty, who loved putting on fireworks shows for the kids each year. We tuned into the radio channel where patriotic music is timed to the lighted brilliance. We “ooh-ed” and “ah-ed” at the show, enjoying one American tune after another.

And then it happened, Reed’s absolute favorite song of all time, Toby Keith’s Courtesy of the Red, White, and Blue, began playing and this was the firework that went off exactly as it did. In my imagination I can only dream that maybe in some corner of heaven, Reed, Scotty, and Jesus said, “That ought to get their attention.”

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Sure! Plenty will look at this and say it was purely coincidence.  I know differently.  A single moment of illuminated display over the windswept prairie was God’s way of reminding us that love can and indeed does go on.

 

The price of yesterday

My family like millions of others enjoyed our country’s birthday yesterday.  Our fanfare was reserved to the later afternoon and evening because unlike many others looming deadlines kept us tethered to the computers for a few hours. Nonetheless, the significance of the day was never forgotten.  As dawn broke, we posted the “Stars and Stripes” outside our door, and we recounted how incredibly lucky we are to have been born here in the “land of the free”.

The cost of that freedom has never been questioned in our family as military service dots our family tree like the ripe mulberries in our backyard currently. Generations of uncles, cousins, grandfathers and my own sweetie have served proudly in the various branches of the armed forces. We often get a few raised eyebrows when people hear of our college graduation dates because mine is three years before his.  When folks learn it is because of my husband’s service during Operation Desert Shield and Desert Storm, the incredulous looks we receive are a mixture of gratitude and awe that war changes everything including your college graduation date. The cost of freedom is never free.

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In the last month there have been a few experiences that have brought this knowledge to the forefront of my thoughts in unexpected ways.  Recently we traveled to one of the absolute best World War II museums, Fagen Fighters.  Although we had visited this collection before, our visit that day was to see a travelling Holocaust exhibit featuring Minnesota survivors.  Also new to the museum was a German boxcar which houses a two-sided exhibit.  One side featuring Nazi officers supervising as a Jewish family exits the boxcar, and the other depicting American soldiers who were prisoners of war.  Our visit was emotionally draining as the journey was heart heavy indeed, but I completely lost it when we got to the boxcar.  I broke down and sobbed.  When I looked in the eyes of the extremely realistic wax figures on the GI side, I felt as if I was looking in the eyes of my great-great uncle, Arlie, who was captured shortly after landing on European soil and was forced to work in awful conditions the remainder of the war.  I have only heard bits and pieces of his story as it just wasn’t something he talked about, but I knew enough.  And there I stood overcome by my emotions as my baffled family looked on. The cost of freedom is never free.

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As a part of our family’s commitment to service we participated in the second annual flag placing for our Modern Woodmen youth service club.  For this project our club purchases hundreds of small flags and places them on the graves of veterans in our local cemeteries.  It warms my heart that our children and friends spend hours walking cemetery rows, honoring those who gave of their time and energy to answer freedom’s call.  Walking in the hot July sun is a small sacrifice compared to what these men and women gave to us.  This year one marker really stood out to me and made me wonder how I missed it last year.  The inscription told of the greatest sacrifice of the man commemorated there.  “He died as prisoner of war in Germany during World War II.”  Once again, I was overcome with tears.  My people came home from their various wars, but this man’s family wasn’t as lucky.  The cost of freedom is never free.

Over the years, I have witnessed some things that I never believed I would like a female college student refusing to stand for the national anthem while seated next to my veteran husband, who had tears pooling in the corners of his eyes.  Then there was the time we were shopping in another college town and there were young people protesting soldiers.  Protesting war is one thing, protesting soldiers is something altogether different.  The sacrifices made by individuals protecting their rights to do so, but both times I wondered how we as a society forget the sacrifices that were made on our behalf.

Twice I was reminded through the eyes of my children that while we can’t jog the collective memories of a nation we can instill patriotism one child at a time.  When Reed saw the protesters he asked that we never drive by that corner again, he was too overcome with emotion to explain his daddy was one of the soldiers.  Even at his tender age of nine or ten, he knew that the protestations were laid at the wrong boots.

FullSizeRender (5)Over the weekend, while tending to the grave of that sweet boy, his baby sister looked around at the North Dakota cemetery and noticed the veteran plaques sitting empty.  “Where are their flags momma?” It was a quiet little question, but it reminded me that in her eyes every veteran in every cemetery should be honored with a tiny little flag each Independence Day as a token of our gratitude.

While the prairie wind whispered through my hair, I was reminded she understood the cost of freedom is never free.

For this momma, that was more than enough.

 

Returning home

Who says you can’t go home
There’s only one place they call me one of their own
Just a hometown boy, born a rolling stone, who says you can’t go home
Who says you can’t go back, been all around the world and as a matter of fact
There’s only one place left I want to go,

Jon Bon Jovi & Richie Sambora

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I don’t know what creativity transpired for the musicians to pen the lyrics to “Who Says You Can’t Go Home”.  What I will never know in song origin, I make up for in sentiment.  Last week, I lived those words. Standing underneath the stately magnolia tree, I was transported to the elementary school days of my childhood when teachers would ask us to clean the erasers.  Smacking those black woolen felt erasers into clouds of white dust, we would enjoy the Southern dappled sun peeking through the waxy leaves.

Carefully walking over the exposed roots, I traipsed back to the vehicle where my completely Midwestern family patiently indulged my tour of childhood schools and homes.  The older I get the more I value roots; both those supporting my favorite tree of all time and those connecting and grounding us to our childhoods.  Although I haven’t lived in the South for nearly thirty years, the scent of Gulf air and the sound of the whippoorwill are not far from my soul’s memories. I haven’t spent much of my life thinking about the influence of the place I call home, but sometimes paradigm shifts are subtle.

It’s always the little things. The interior paint of our home is called “sea salt”, my grandmother’s cast iron cornbread pan rests on my stove, and a big bag of grits can be found in my cupboards. The South never truly leaves a girl.

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On our recent vacation, one which was planned to correspond with my grandmother’s 92nd birthday, I realized just how much the South has shaped my life. Although I love both of these things, my nostalgia extended far beyond “yes ma’am’s” and door-opening gentlemen and somehow I felt more alive than I had in many days.  Of course, visiting in the summer was questionable judgment, but when your Mama is a June-bug there aren’t many alternatives.

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My senses were overloaded in way that made my soul say, “Remember this.  Savor this moment because your next infusion might be awhile away.” The sound of the Gulf waves lapping the shore were the melodic framing of many days and nights. The smells of home cooking and the sea aroused my olfactory bulbs.  All the swirls of green and blue with a few white blossoms punctuated my vision causing heart to be truly content. The feel of salt spray on my skin and sand between my toes lingered for days.

This is home. This is where I truly feel happy.

It wouldn’t be the South without the swapping of tales and little humor sprinkled in the right places like the when my uncle teased the waitress the cooking was so good it would make someone want to slap their grandma or when my vegan cousin suggested he could buy a whole lot of carrots with a gift card to a fish house.

My South included the divine, sitting in the wooden pew of a little white church being surrounded by the “Amen’s” of God’s people and the standing to sing the hymns of my childhood.  Having the opportunity to speak and share God’s love for others while my Southern Baptist uncle, who happens to be the pastor,, looked on and said I had missed my calling melted my heart completely.

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We did a whole lot of visiting and eating. Sharing my childhood with my children included a gastrointestinal tour of the southeast. There were Cracker Barrel and Po’Folks veggie plates, lemonade and chicken sandwiches at Chic Fil’A, big ol’ Texas sized burgers at What-A-Burger, juice dripping Georgia peaches, and limeades at Sonic, but somehow my favorite boiled peanuts eluded us.  Buying the shrimp straight off the boats at the biggest tourist attraction in Florida, Joe Patti’s, was a must as was al fresco dining at Flounder’s amid cannons firing at pirate ships on Pensacola Beach.  A little walk-up stand was frequented twice, because the best foot long chili dogs and milkshakes in Alabama can be found there.

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Included in our moments were the new memories made like when my children asked to eat at a Waffle House because they had only seen a bazillion of them on our drive from Atlanta to Pensacola.  They were dismayed at my neglect of never having brought them to one of the iconic diners.  Mutiny akin to that of those pirate ships was on their mind when I professed that while they had never eaten at one, their older brother actually had.  Their steely silence lifted when the gigantic waffle was set before them.  Thank goodness for pecan waffles – a mother’s saving grace!

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None of the places visited or the food eaten was the greatest part of our trip.  No sirree! as my tiny little cousin exclaimed more than once in our visiting time.  He along with every other cousin, aunt, uncle, mom, dad, and grandmother were the best part of my grounding. Hugging necks and breathing the same air as my family – all of them – was truly the greatest blessing of my summer.  Having my Minnesota children experience every bit of it was – well, the lemon in my sweet tea.

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Today no matter where you are and where you define home, be thankful for the memories stored there. They are a priceless collection.

As for me, these are my people and this is my home – every Southern fried bit of it!

 

 

Be wild and free!

 

Dear Erin

Last night, Dad and I went to the store to get the one last piece of your gift for today.  I won’t say that the ceiling of the Wal-mart split open and choirs of angels illuminated the path, but what transpired was about as close to that as possible. Rather than our eyes glossing over after reading every card on the shelf, the very first card was the absolute perfect one.

Needless to say we were stunned that it was perfectly fitting.

We never expected having a daughter to be all ruffles and lace.

Good thing.  Because what we got was DYNAMITE in a dress – when we could get you to wear one.

And when we weren’t praying for your survival, we were glad to see you growing up strong and confident.

From the moment you arrived in the world, you have always traveled your own way.  I think your Dad’s declaration that there would not and I quote, “NOT BE A CLOSET FULL OF PINK DRESSES” the day we you were born was just the start of that fiercely independent streak.  After fighting to live on day one, you have proven to be a tower of strength ever since.

I am going to tell you something that I have never told you before about raising a strong, independent, and in charge girl.  Not everyone appreciates parents who do.  I distinctly remember some friends coming to visit when you were about six months old.  They had a son and a daughter the same ages as Reed and Sawyer.  Life is too short to deal with “friends” who constantly judge your parenting.  After spending the weekend together, we discovered they were raising their children to sit quietly and observe the world, while we were raising explorers and adventurers.  As they packed up to leave and said their good-byes, they just couldn’t leave it alone.  Their parting words were, “Oh good luck to you Erin. You are going to need it!”

We never spoke to them again because I was flabbergasted and shocked and appalled.  Secretly I made a promise to you on that day that you could be as wild and free as you wanted and even though your closet has never been full of dresses that you could become whoever God designed you to be.

There were days when I had to hold my breath.

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That promise meant there were bumps and bruises because you had to experience the world your way.  And while your knees were often skinned up, mine were often on the floor praying God would guide your steps.

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But the funny thing about raising tough-spirited girls is that along the way with all the rough and tumble most develop hearts for injustice and the courage to be the change needed in the world.  More than once, I have seen you speak up when someone has been slighted, overlooked, or left out.  And that takes guts. 

Recently I watched as our whole church was stirred to action because of something God placed on your heart.  Think about that for a moment.  As a teenager, your heart led a ministry to blossom and God blessed us all for it.  Don’t ever diminish the greatness God has in store for you.

I don’t know when I recognized that the promise I made to you all those years ago was playing out in living color.  But one day I realized that you were the embodiment of one of my favorite quotes.

Well-behaved women seldom make history. ~ Laurel Thatcher Ulrich

Keep being uniquely you and together with God’s help I know you will make amazing things happen.  Be fierce and courageous, never forgetting that you are made of the incredible stardust that created the stars throughout the heavens.  And just like the nuclear explosions that created their existence, your strength and dignity and faith will change the universe.

Happy 17th Birthday to you, my wild and brave warrior!

Love, Momma

 

 

 

 

Shine On!

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Dear Reed –

I cannot believe that today would be your 21st birthday.  How could it be that I have been a momma for twenty-one years now?  How can it be that eight of these birthdays we’ve spent away from you?  It doesn’t seem possible, and it definitely isn’t fair.

Last night, I got a serious case of the giggles.  I was thinking about how enamored you were one day with your Grandpa Earl.  I vividly remember being snuggled up with blankets on the cold, leather couch in the air conditioned basement, watching Land Before Time for the umpteenth time when out of the blue you told me how much you loved your Grandpa Earl.  You professed your admiration because your bar-owning grandfather worked at the candy store and eats fire. (Because who doesn’t go visit their grandfather at his namesake tavern and get sweet treats?)   I will never forget how hard I had to stifle my laughter.

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Reed (around age 1) and Grandpa Earl

Yet, it was a defining moment teaching me: love sees only love.

Your ability to see the love (and many times hurt) in any situation is why I feel so profoundly sad on a day like this where I miss you more than ever.

The world lost an amazing kiddo the day you died.

While you were our sunshine, you were truly a beacon to the world.  You loved with abandon and you reminded us often if people hurt you they were most likely hurting themselves.  I will never understand how someone so young could have such wisdom.  I was truly blessed to walk this earth with you even if it was for too brief a time.

In the last few years, there has been so much hate spewed in this world, I grieve simply turning on the television or radio hearing all the awful ways hate and hurt can perpetuate themselves.  I often catch my breath because it all seems so intimidating knowing I am but one voice.  Then I remind myself you never diminished the power of a single person showing up to be someone’s beacon.  With that hope, I steel my resolve and know shining a light may be all I have to offer the world, but today and every day that will always be more than enough.

We need more of what you had in this world – right now and always.

After my late night giggles imagining fire eating grandpas at candy stores, my heart traveled down a lane that I don’t like to traverse.  I recalled our last heartfelt conversation. In a busy family of four young children, small talk abounds, but deep connections are sometimes fleeting. After picking you up at the local caucus (an incredible decision for a 7th grader), we drove back to our house where a Mardi Gras celebration was well under way.

Quietly, you once again amazed me.  It isn’t going to be much longer, Mom.

Perplexed, I inquired as to what in the mayonnaise you could have been referring?

Mom, there is so much hurt in this world.  It cannot be that much longer before Jesus comes back to make this all right again.  We cannot go on hurting each other like this.  We just can’t.

I will never know what you heard at that political gathering, but whatever it was stirred your heart and called you to love fiercely as you waited for the embodiment of love to return.

At the time, I thought it was a strange conversation, but to be honest, I was more worried about whether I hid the baby in the Kings’ Cake well enough.  Seemed so important then, and now I see how absolutely insignificant it was to the lesson you were trying to teach me. Little did I know that exactly a week later, we would be returning you to heaven to bask in the eternal light of love.

All this time, I have wondered if somehow deep inside, you knew that you would not be here for much longer, and you wanted to make sure I understood that like your favorite superheroes we can never give up hope, we can never stop fighting for those less fortunate, and we can never stop believing that good will conquer evil.

Well, I listened and in my heart, I carry your legacy with me wherever I go. 

Love is a powerful force.  No matter our differences, and I daresay, despite them, we must always be willing to love and show light where darkness tries to wipe out hope.  We must be willing to come to the table with hearts open enough to recognize we don’t know everything we think we know about someone else’s story.  We must always be willing to be a helper – at all costs. Finally, we can never, never, NEVER, give up on the hope that the world can be a place filled with love.

I cannot imagine what heaven will be like, but if just for a moment, I can believe that you and Grandpa Earl will find a bar stool in a quiet tavern there today to sit together.  When you two raise a glass “to love”, maybe just to make your momma smile, put a few quarters in the jukebox to sing along like we would at a campfire.

And for the rest of us, we will raise a glass (mine will be sweet tea), and go out shine our lights of love brightly, now and until we can hug you again.

Loving you every day until then – Momma

And then this happened . . .

 

After the death of a child, life does go on.

But it will never be the same.

There will always be the BIG moments. Milestones, such as graduations and weddings, will always have a quiet undertow which pulls at our tsunamic joy as we wistfully imagine what Reed would be doing if he were here.  Yet it is the quiet moments of everyday, ordinary life that often sneak up and seemingly choke the life out of us.  The sweet aroma of our loved one’s life creates olfactory wisps in the simplest of situations.  The inside jokes, the around the back hugs, the smile that could light up a room, the love of all things superhero, and just the passion for loving others are the ones missed most often.  But then there are the silly things like when someone uses the wrong side of the Parmesan cheese that bring a smile to my face and a tear to my eyes simultaneously.

Life goes on, but there is always that nagging reminder that if Reed were here, he would love (or in some cases, detest) this.

Life does go on, but missing him never ends. So it was at a recent event for me.

For a period of time years ago, our children were enamored with the thought that we were once children ourselves.  This epiphany popped into their collective consciousness about the time we explained that you only had one shot at the It’s the Great Pumpkin, Charlie Brown annually.  At the time, videotapes were the rage and our children could not fathom that we were not able to watch, rewind, and watch over and over our favorite shows.  They were crestfallen when I explained that the airing of the beloved Schulz creation often corresponded with my Wednesday night church obligations.  They wept for the little girl now grown up to be their Momma.  How tender were their hearts!

When they discovered that, at first, neither parent’s families owned a VCR, but rather rented one from the movie store if they wanted to watch a movie, they were hooked on learning all things family lore.  Every night at supper, our sweet kiddos would beg us to tell them a story about our growing up years.  We would tell and retell stories of ourselves, our parents (their grandparents), and our siblings/aunts/uncles/cousins.

Travelling down yesteryear’s memories was a great time for all of us, but it was eye-opening to our children because we live so far away from our immediate families.  This dinner table trend continued uninterrupted for many months – until the day the tables were turned.  Getting into the spirit of swapping stories, Reed blurted out, “Sawyer, remember that time we parachuted off the bunk beds!”  Even then, second son did not suffer fools lightly and shot his redheaded older brother a look of painstaking agony, across his plate of ravioli.

Of course as the parents of these two Wright brother wannabes, our ears were definitely perked.  My calm response was, “No Reed.  We don’t remember. Do tell.”  Sawyer’s dramatic slap of his hand on his own curl-covered forehead did not give the storyteller the indication he should perhaps just move on to another subject.  Eventually, we learned the truth.  The boys sneaked grocery store plastic shopping bags into their room, proceeded to stick their arms through the holes, and promptly jumped off the bunk beds hoping to glide effortlessly to the floor.

Considering they only ever had junior style bunk beds, with the tallest being only four and half feet off the ground, they weren’t very successful with their adventure.

It was our first indication that our boys led a secret life to which we were not always privy.

Since that moment, I have never been able to look at a plastic shopping bag or a parachute without a small smile pursing my lips.

But how does this cherished memory have anything to do with grieving a boy gone much too soon?

One of the things he loved was Children’s Theatre – both watching and participating.  Recently, his baby sister (who it pains me to admit is almost as old now as he was when he passed away) was involved in our local stage company’s production of Peter Pan, Jr.  Sitting in the seats she had preselected, I felt the tug of grief spreading its icy tentacles up to my heart.  Thoughts of “Reed would love this” swirled in my mind. I could feel the sadness begin to emerge from my eyes.

Suddenly a flash of white plastic took my breath away.  A few rows below us was a little girl playing with her stuffed dog and yes, you guessed it – a store bag.  I watched as over and over she fashioned a parachute for her stuffy and let it rip, gently falling to the ground next to her seat.

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My tears of sadness quickly changed to lighthearted laughter as I could practically feel one of his signature hugs enveloping me in my theater seat.  Much like Tinkerbell’s tiny voice, if I listened closely, I could almost hear my red-headed wonder whisper to my heart.  I am right here Mom.  I am right here.

 

 

 

Warrior On, Momma

Recently, I was hired for three speaking engagements for our local hospital system.  I was honored, humbled and awed by the requests.  One of the talks was for a leadership group that met monthly, and my talk corresponded to the chapter about leadership on the frontier from the book the group had been reading.  Before visions of Walt Disney’s “Frontier Land” flash before your eyes, the frontier in question is being intentional about leading and looking for ways to serve those who have been misaligned, neglected, forgotten, hurt, or misunderstood.  I shared lessons learned as a quarter of a century (How could that be true?) educator, peppered with anecdotes and tales from the trenches classrooms of children ranging from 2nd grade to college seniors.  At the conclusion, my challenge to the group was two-fold:  1) ask God to break your heart, because from the depth of sadness we often find our passion and 2) don’t think too highly of yourself.  The latter being a message for me as well.  I have had successes as an educator, but I have had equally as many failures, steps backwards, and misunderstandings.  And there I stood before vice-presidents, presidents, and top-notch health care executives asking them to remember every leadership lesson I shared that day was taught to me by children.  Physician: heal thyself, and teacher: educate thyself.

One of the greatest lessons I have learned in life (and one of my leadership points) came from one of my life’s saddest moments. After enduring the heartbreak of losing Reed and trying to help Sister and Sawyer heal from the bus crash, I quickly came to the realization that much of what I think I know about other people’s lives is wrong.  This education arose through the wisdom of those who had walked in our shoes but was refined by those who had no idea the advice they were proffering was not helpful and worse yet, at times, hurtful.  While our valley of grief was long and arduous, it was still worthwhile, producing gentler and kinder versions of ourselves.  We became a people who realized that much of the ugly in the world is a direct result of sadness and hurt.  As a teacher, this education was better than anything I have ever learned in a book or in a classroom.  I had to walk a journey of a million steps in pain to produce a heart that recognizes when a student seems to be out of sorts, there is typically some type of hurt or sadness behind it.  Serving others came naturally to me before my darkest day, but loving those who appear “unlovable in the moment” became my rally cry afterwards.

I honestly wish that all educators would have an earth shattering, heartbreaking moment. Many have already experienced their own sadness, but for those who have not, the result would be eye-opening.  Sadly, I know this be true, because of experiences one of my children has had over and over again.

Six years ago, my oldest daughter began to experience hives.  At first, the outbreaks appeared to perhaps have an environmental trigger (akin to seasonal allergies), and then a suggestion was made that maybe water might be to blame.  Swimming produced hives, but showering and using our hot tub did not.  Time and again, we went back to the proverbial drawing board. None of the “causes” were the real culprit. She has been poked and prodded (one visit required 17 vials of blood), written incessant journals of food and activity logs, and tried all sorts of medications, creams, and ointments.  We have even tried homeopathic remedies, but not a single thing made any difference.  Meanwhile, she has endured urticarial (the scientific name for hives) episodes every day – EVERY DAY – for the last six years.  Some outbreaks would be small clusters.  Others would be large nodules, and worst of all, would be the times  hives the size of dinner plates covered her body.

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Photo by Steph Moon of Moon Photography (Even for the prom, the hives were present.)

 

While some notice the welts that would appear at whim, very few notice the side effects.  Sleep would be elusive due to eruptions happening or the uncomfortable nature of itching and scratching.  Outbreaks are also mentally and emotionally draining.  How many teenage girls do you know that want to sit in class and suddenly have red and enflamed clusters of hives break out? Fashion accessories they are not. On top of it all, how does a student maintain focus and concentrate when pain is a constant companion?

Removing my teacher hat and simply being my child’s momma, we have seen every possible specialist with the hopes of finding a definitive diagnosis.  We have logged hours in clinics and hospitals, in the car travelling great distances to talk to the “best of the best”, and in the library reading every possible article and study on raising a child with chronic illness.  Often we shared these studies with her school, in the hopes of helping others to understand how debilitating chronic illness is.  Some times our efforts seemed to be in vain, when it was suggested that

  • These hives are all in her head.
  • Pretty sure this is a sign of anxiety. (She does NOT have anxiety.  Trust me, among the myriad of doctors, we checked and double-checked.)
  • She is doing this for attention.

Short of “appalled” and “righteous indignation”, I have no other words for these suggestions.  I will be honest.  I have cried more tears than I knew possible; many of those tears wept while lying in my bed grieving my child’s journey. No momma dreams of her child having a debilitating, chronic illness. While some call me “strong”, they might be shocked to learn there are definitely things that sentence me to my bed because life is simply that overwhelming. Yet somehow in those painful moments quietly tucked under the covers, my eyes are drawn to a God who I know loves us and my sweet girl more than I ever could.  

During these times, He reminds me there are the teachers and school nurses whose hearts have been broken and who try to understand what our girl is going through.  There are also doctors who look your sweet child in the eye and say, “I believe I know what you have.  No more pokes and prods. No more journals.  And while there isn’t a cure, there is a treatment for which I think you would be an ideal candidate.”  Even more so, this amazing physician held my child’s hands and lovingly reassured her that she would no longer slip through the cracks and told her emphatically “No! None of this is in your head.” and cried with her.

I have learned many lessons through this saga, and as the treatments continue (Praise the Lord successfully so far!), I am sure there will be others to learn.  Throughout my career, I have always tried to err on the side of compassion, but for the times I failed, I am truly sorry. For my students of the past, present and future: I can only offer that today because our struggles, I am a better person for it.  So when you come to my classroom or office, just know I will listen and together we will make a plan for you to be successful. For every educator – no scratch that – for every human being: ask God to show you the sufferings of others and how you can be a shining light in the midst of their storms.  For all the mommas who have children with illnesses seen and unseen, who search for answers even when they aren’t the ones wanted, who have shed tears and have lost sleep, and who have had to explain their child’s illness over and over, just know you hold a special place in my heart and more importantly in my prayers.

For you sweet mommas, I have two words: Warrior On!

 

 

 

When mommas fail, but schools don’t

Last week, we had a really rough morning.  It was not my finest moment as a momma.  My youngest whose normal routine for getting ready for school can best be described in one word – poky – was trying to rush us all out the door.  Even when the stakes are high, she is never in a hurry to get all she needs to have accomplished before it is time to leave.  This particular morning was different, she and her best friend wanted to arrive at school early because they wanted to be ready for the state tests.  (Honestly, in all my years as a teacher, I have never heard of anyone who was excited to take the state standardized tests. Hats off to their Language Arts teacher!)

Unfortunately the best laid plans of mice and enthusiastic test takers often go awry. Our entire house overslept.  I’m not sure how four people could sleep through four different alarms, but it happened.  Needless to say, we did not start out on a great note.  By the time, we finally loaded into the truck, I was leaving without packing a lunch and felt under-prepared for a day of inspiring young college students.  I realized I had forgotten something critically important and went back to get it.  In an effort to be helpful, Sally grabbed my bag off the driver’s seat and placed it in her lap, not realizing that she knocked over the glass of sweet tea I had precariously sat inside the bag. When I returned, every item I had in the bag was covered in two inches of liquid.

Because I had electronics in the bag, I couldn’t just leave the mess for later.  I stormed into the house, dumped the whole bag into the empty sink and tried to salvage as much as I could.  By the time we left, I had one girl in tears and another on the verge because her friend was hurting, and I was trying my very best to give them both a pep talk about how they were going to rock this test.  No one in that vehicle believed the speech – including me.  As we stopped in the carpool lane, I tried one last ditch effort to no avail, and watched in the rear view mirror as my littlest sobbed walking up the sidewalk to the school.

After quick trip home to recover what could be saved,  I made a tough decision.  Even if I was late to work that day, I was going to the school to hug my girl and to tell her I loved her.

marshall middle school

Upon my arrival in the office, the administrative support person was delivering the daily announcements.  I listened intently.  The last announcement left me with more tears than I already had experienced that morning.  My sweet carpool girls had already told me about the significance of the day, but in our haste to get out the door, I didn’t ask too many questions.

The final announcement explained that a sweet young boy,  a former student who passed away from a mitochondrial disorder the year before, would have been 13 years old that day.  Students were asked to wear green (in support of those affected by mitochondrial disorders) and for a one dollar donation to the UMDF foundation  students could wear hats in school for the day.  This was all fine and dandy but it was what happened at the end of the news that made me incredibly thankful for the Pledge of Allegiance to regain my composure.

At the conclusion, the sweet lady announced that after a small countdown, they (the entire school) would be collectively wishing Alex a very “Happy Birthday!”

3 – 2 – 1 – “Happy Birthday Alex!” was loudly and cheerfully echoed from every hall and every corridor.  As the momma of a child who died at a similar age as Alex, my heart was breaking for his parents.  I was also so sad that they probably didn’t get to hear this amazing support for their son.  I was never so incredibly proud of a school that did not fail the memory of this young man, especially since due to his condition many of those well wishing voices perhaps never had the pleasure of interacting with him. 

Looking back now, alarms not alerting and spilled tea might have been a bigger part of God’s plan for me to realize a few ruined papers and one crazy morning are not the ruin of a day. He gently set me straight with an amazing reminder for us to celebrate – not just after loss – but in the small magical moments of the ordinary, because it is in the little stuff that the BIG stuff really matters.

And rest assured. When my little girl came down to the office, I hugged her even closer while thanking God I got the joy of sharing in Alex’s big moment with her. 

To learn more about mitochondrial disease and to support families like Alex’s, please visit:  http://www.umdf.org/site/c.8qKOJ0MvF7LUG/b.7929671/k.BDF0/Home.htm

Special note:  It has been a while since I have given this reminder, but make sure to hug your children today.

 

We’ll tell you when you’re older

Even though I know the outcome of their fateful decision, there are times when I identify with Adam and Eve. I am wired in such a way that the quest for knowledge is an insatiable thirst. When a new thought or idea crosses my mind, I study relentlessly to learn more. There are very few things which I allow to stand in the way of learning.

This hasn’t always been the case only my obstacle had nothing to do with me or my efforts. It was entirely my parents’ faults.

Growing up in the South, my life was a pretty insulated one. Whenever there was something that adults thought was too much knowledge too soon or something they didn’t want to disrupt our childhood innocence was met with a definitive, “We’ll tell you when you are older”. In my early elementary years, I would just shrug it off and not press much farther, trying not to think too much more about the forbidden knowledge. Although many times my wonderings often led to a dramatic and exhausted utterance of the phrase I would grow to despise.

little me

How could they resist not answering my pint-sized version of adorable curious-minds-want-to-know? In their defense, my nature was to ask questions, longing to understand anything and everything. I am certain I wore them down with curiosity.

As I grew a bit older, their resolve was steeled, but little did they know so was mine. They held the key to a vast library of knowledge to which I wanted access. I vowed I would remember all those questions to which my only answer was the annoying “we’ll tell you when you are older”. Unfortunately, my determination was no match for my curiosity and inevitably, there would be some other fascinating thing which would capture my attention and off I would go learning everything I could about my new interest.

They didn’t use their pat answer during my high school or college years, because, frankly, I think they knew I was on to them. They just wanted to keep us little forever. It was either that or they are information scrooges. If you’ve met my parents, take your pick.

If I had been smarter during all those years living at home, I should have pinpointed an exact date, age, or time when I would be deemed old enough to know all this forbidden knowledge. Why didn’t I think of that sooner? I have been waiting years for all those answers to which my parents are the self-appointed gatekeepers.

Visions of “nobody sees the Wizard” have been swirling around in my imagination for decades.

Apparently, the answer to how long one must wait to be old enough is about forty years. Just this weekend, I was doing some fact checking from my kindergarten days for my upcoming book. I sent a benign text to my mom asking about our first puppy. She must have been feeling incredibly generous or perhaps it was the lateness of the hour that caused her to let her guard down. Either way, the stingy knowledge keeper let slip a piece of the story I never knew.

AHA! Knowledge is mine . . . sayeth the child.

I am tickled to know that I’m finally old enough to know the once unallowable answers.  Now if I can only remember all those questions!

Just enjoying the day

This is not something I am proud to share. But my daily existence has a to-do list that never ends, and my time is often double- and triple-booked.  Rarely do we have a moment that isn’t overscheduled. Yet the last two weekends were ones that had me celebrating the unexpected – the magic of the unscripted.

On Easter afternoon, I called my ninety-one year old grandmother, Mama, for a chat.  She is homebound in Alabama, and I know she doesn’t entertain many visitors.  An aptly timed phone call every week or so, often lifts her spirits.  In our conversation, I shared we had enjoyed our Saturday and the one before it just spending time with some dear friends.

Her voice drifted away as her mind raced back through its years of memories.  We don’t do that anymore, but remember, Shug, we used to do that.  Just enjoy our day.  You know yourself we used to all get together and just enjoy our day.  We’d eat and visit and spend the whole day together. But we don’t do that anymore.

My heart broke at the last line.  She’s right. We don’t do that nearly enough, or in my case, sometimes ever.  I am my own worst enemy when it comes to the busyness of my life.

I say YES when I should say NO. I lead with my plans rather than checking to see if they are God’s. I fill my calendar with requests for my time even when they pull me in directions I didn’t intend to go, and yes, at times that means crazy.

Yet the unexpected time spent with family and friends (who we call family) in recent days have worked like divine spittle removing the scales from my eyes.

Two weekends ago, cousins passing through on a cross-country drive stopped in after spending the night at home of other cousins.  As we sat and visited, the cousins who offered the place to rest pulled up in the driveway.  At first my eyes could not believe it.  What my eyes didn’t believe made my heart burst with excitement. My thoughts swirling around this is going to be the BEST. DAY. EVER! And it was!

Fast forward to this past weekend and my hectic schedule kept me from organizing get-togethers much sooner than I actually did, but traditions are the glue that hold my clan together.  A quick e-mail the day before turned into a day long time dyeing eggs, visiting, and going out to eat.  One big family just enjoying the day and making memories.  I had to hold the tears at bay watching my adopted granddaughter dye eggs, knowing how much Reed would have enjoyed that moment.  He would have loved her.

Our best friends love us despite our busyness, and they have embraced our penchant for eleven minute planning.  You read that correctly, it says 11 minutes not in the eleventh hour.  Our gatherings often begin with a text, phone call, or bumping into each other at the store a few minutes before we plan to do something.  This style was true to form this weekend.  One text created an entire Easter dinner and egg hunt of which we enjoyed every second.  Good food, even better stories, one hand picked family (minus the college students) just enjoying the day.

I often say that God has to slow me down to realize what he is trying to tell me.  More times than not, he has to repeat the message over and over for me to catch on.  Three unexpected times of slowing down with loved ones and a heartfelt, memory-laced, reminder from my Mama were eye-opening experiences which led my heart to focus on the message in our devotion at supper last night.

enjoy the day

How much is the sheer busyness of your life preventing you from living the life God is calling you to live?

The convicting answer was way too much.  God got my attention.  How will he get yours?

As for me, I am hoping to fill my calendar with many more “just enjoying our day”.