Tag Archives: cancer

The waiting room

It was a long and agonizing wait when the Boy Wonder was in the MRI machine to determine the correct diagnosis for the lump on his leg. I refused to sit and search on my phone for all the statistics and logistics regarding sarcoma, because I knew that would do nothing but stir up my heart even more than it already was. Having had an acquaintance battle sarcoma, I already knew some details – none of which were good.

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I did what any person trying to avoid her feelings would do when sitting in the lobby area of a hospital or clinic. I picked up a magazine and tried to redirect my horse galloping heart to slow down, peruse the pages of a battered and worn Better Homes and Gardens, and attempt to calm down. For a little while it worked. I did text a friend who had asked me to apprise her of the situation, and I prayed for a while. She joined me in those prayers, her heart echoing my own fear.

After a short while, another friend and mom of a schoolmate of my children came in with one of her sons. We chatted about all sorts of things, before she asked why I was there. When I said my son was in the diagnostic machine, she grew a little concerned. All I could comfortably share was “it may not be good”.

She smartly changed the subject to prom and graduation, inquiring how planning was going on the latter. We talked for quite some time about my worries (and hers for next year) and getting everything just so, noting that not one of our guests would ever know the difference. I shared what another friend had said to me, and she quickly breathed a sigh of relief.

“I have been sitting here thinking exactly that.”

The sentiment was one of finally getting to have a graduation party. In all the ways that counted, the day was all about Sawyer, but in some inner recesses of my heart the day would also be for Reed and all the ways he and his classmate were not celebrated two years ago. This sadness going all the way back to the e-mail we received from the school stating that our “student” would have been graduating. The caged agony had been brewing. Come on! Are you serious? He was in a class just shy of 40 and no one had the decency to use his actual name? Did you forget that he died as a part of the normal school routine, riding the bus home? I would be lying if I said that shocking correspondence doesn’t still hurt, because it deeply and profoundly does.

The friend sitting there knew nothing of that nor the agonizing months we waited to hear if our son would be remembered at all, but what she did know was how much we love our children and how incredibly difficult it had to have been to not have a party for Reed. Her words of acknowledgement of that hurt soaked deep into the pores of my soul like the soothing balm of Gilead. Her words were healing, as if she had scooped me into her arms and we rocked together on a peaceful front porch, wiping away locked up tears, and sipping some iced tea for good measure. Her words so simple, so sweet, began to cover the ingrained scars on my heart for a loss of something I didn’t realize I was grieving until I was confronted with it for my second son.

In this world, we have the opportunity to do the right thing. I am learning as life goes on not as many people as I would have hoped choose to do that. For those who love out loud, please know your gifts of encouraging words, calls, texts, e-mails, prayers, unending love and support matter. Without those two women speaking truth into my heart, I don’t know how well I would have made it through the ensuing days – waiting for the phone call, preparing for graduation day, and surviving the party we had while thinking about the one we didn’t.

Maya Angelou once said, “There is no greater agony than bearing an untold story inside you.” Whether it is the ravishing scars of grief or a possible cancer diagnosis or anything that brings hurt to your heart, keeping such things locked inside is an anguish that I wish on no one, but one I intimately know.

For one small moment, in a sterile clinic waiting room, battered magazine in my lap, I was incredibly thankful for a friend who let me open the cage for the bird, hiding in there, to fly away. The gentle flutter of the wings of sadness passing by the crevices of my heart created a feeling of being beautifully lighter once released.

photo by Laauraa found at http://sgsushant.blogspot.com

photo by Laura Kok found at http://sgsushant.blogspot.com

I couldn’t help but imagine that is how God’s heart feels when he is waiting in the throne room for me to bring the hurt to him. Sadly, more often than not, I embrace the hurt before I carry it to him. I think he often uses friends, family, and yes, even strangers to speak the words I need to hear to relinquish the hurt for which he is so much larger and his grace is more than sufficient to cover. He is waiting with his bottle to collect my tears, a lap big enough for my hurts, and a promise to love me through it all. A perfect reminder: I will always be his child, the one worth waiting for.

I lost it

With a month left of his high school career, my Boy Wonder was swamped with papers for several of his college classes. Unfortunately he had to skip out on a family outing to support my mini-me at a volleyball tournament. When we returned home from the day’s games, he informed us he had a lump on his leg that concerned him, and he had called the Ask-A-Nurse number for advice.

Insert screeching halt sound effects – Do what? You have a lump? You called Ask-A-Nurse? Since when do teenage boys call Ask-A-Nurse? Is my boy now a man? Do I have to change his pseudonym from Boy Wonder to my Superman?

superheroes

After all those swirling thoughts calmed in my brain, we dissected the advice given by the voice on the other end of the line. He needed to get in as soon as possible. We made an appointment, not too worried because cysts have become a routine part of his story since the bus crash. I have lost count of the number of those that have had to be surgically removed. The one that required a delicate three hour procedure definitely hasn’t been forgotten.

Our meeting with our family doctor did not go at all how I had expected. After examination, he gave us four possibilities: a hematoma, a cyst, a benign fatty tumor, or a cancerous tumor. At that last one, I think I began having heart palpitations. Due to the size of the lump, he lowered another blow. My kids adore our family doctor, but his best advice was he was not the doctor we needed. A surgeon was required. I don’t care that my children have had over 25 surgeries in the last seven years. I turn to mush every time the “s” word is uttered. I am so tired of my children hurting.

The meeting with the surgeon came the day before the prom, and I was hoping that if a procedure was needed we could, at least, let him enjoy the final dance of his high school years. I never in a million years imagined what happened next. The doctor quickly ruled out the hematoma and the fatty tumor, and really didn’t think it was a cyst. He then went on to say that the lump was presenting as sarcoma.

The Boy Wonder was fast and furious taking notes on his phone so that he could do some more research later. Have I mentioned lately that he hopes to become a doctor? While he went into future physician mode, I wanted to ball up on the floor in the fetal position. I fought back the tears in my eyes and tried (very unsuccessfully) to be brave for my son.

Miraculously, the MRI machine was currently empty, and we jumped at the chance to get a diagnosis sooner rather than later. After about a half hour, the technician came out and asked if I was “the mom”. She then explained how the radiologist didn’t like the images and had asked for a dye injection. She assured me that the procedure would take only fifteen more minutes. Are you kidding me, lady? I would wait until kingdom come if needed for my son.

Fifteen minutes it was not. Forty-five minutes later, he emerged famished and eager to get back to school. We got into the car, and my steely resolve vanished rapidly. I tried to ask if he was okay, when he noticed the tears in my eyes.

All I could get out was “we’ve come so far”. I didn’t have to say anything more. He knew what I meant. He was weeks away from graduating from high school and clearly more than ready to spread his wings to soar. A diagnosis of cancer would change all that. Not to mention the surgeon’s words echoing in my head, “if it is sarcoma, then we wouldn’t be able to operate in that location”. Oh sweet Jesus, please let this cup pass our family. I lost it.

My incredible son looked me in the eyes and these are the words he said . . .

Oh momma, don’t cry. I don’t think it is sarcoma. I just don’t feel it is. Mom, I get it. You are worried, but here is what I know: there isn’t a challenge I have met in life that I couldn’t handle.

Although I was momentarily reassured, my thoughts kept running away from me again. When did he grow up? When did he stop being my little boy and become a man ready to make more of a difference in this world than he already has? When did he become the comforter?

The next few days were agonizing. We told only a handful of friends and asked them to pray. We plastered smiles on our faces, and we pressed on. We pretended that our insides weren’t melting to goo, our crisis survival skills weren’t kicking into high gear, and our thoughts weren’t questioning if we could endure another blow. Lots of prayers were sent heavenward. Memories replayed an MPR show from winter stating that 1 in 2 Minnesotans will be touched by cancer in their lifetimes. One in two? And very little sleep transpired.

The call finally came five days later. (In their defense, there was a weekend in there.) The radiologist found that it was NOT sarcoma (THANK YOU, GOD!). I only heard very little of the rest of what the nurse explained. The name of the diagnosis was extremely long and basically may or may not go away on its own. It will need to be watched, but it won’t take my son’s life.

After spending some time on my knees, my heart began to take its own roller coaster ride. As much as I wanted to celebrate, I couldn’t because my heart hurt for the mommas (and daddies) of the world who wouldn’t be receiving the same good news we did. They would be gearing up for the fight of a life (literally), and they would be enduring sleepless nights, searching for countless hours to find ways to help their child, fielding phone calls and e-mails and texts from well-meaning friends who have offers of miracle cures, and learning just how powerless they really are when it comes to their child’s health. All the while, they will be savoring each day, each moment, and sometimes each breath they have with their child. They will celebrate milestones and will put on plastered smiles and will cry in the hospital corridors and elevators so as not to scare their child and will do anything to make it a good day for their sweet babes. My heart cried out for them all.

Sometimes, I think God gives me these moments to remind me of those who so desperately need my prayers because I know firsthand how such prayers can give you that extra ounce of energy to take the next step forward. Prayers have bolstered my family in the darkest moments of our journey. A literal life line! I know I haven’t reminded us of this in a while, but please, please, PLEASE hug your kids tonight and be thankful for every day you have with them.

A ticket to the dance

Today’s start was leisurely and peaceful – two words I would not use to describe most of my mornings.  Our children were out of the house early to volunteer, giving my sweetie and I time to read the paper while the quiche with kale and red peppers was baking.  What a delicious way to start the morning!  We talked about the headlines: the loss of another business in our small town and the recognition of a friend’s dad for forty years of service at the university.  We lamented the former and celebrated the latter.  Eventually, our talk turned to basketball.  Not very surprising in our house as it is March Madness after all.  My husband is a reluctant fan.  He isn’t glued to the results but always wants to see a good match-up.   I, however, watch the games with an eye discerning athleticism and a heart looking for a good story.

Last Thursday was no exception.

It was a busy afternoon for my taxi service, completing carpool duties and driving my own children to appointments.  The entire ride all ears were riveted to the radio for a girls’ basketball semifinal play-off game.  They weren’t from our school, but we wished and cheered, hoping they could pull ahead from a double digit deficit. As the game clock was slowly ticking away, my littlest and I continued on with errands.  The final minutes of the game unfolded. We sat in our van in the beautiful sun . . . outside of the mall.  While she loves playing basketball, her interest started to wane, as she plucked her latest book from her backpack.

At one point, she looked up from her pages and tenderly said, “Momma, are you crying?”.

I assured her worried heart that I was crying happy tears.  When you are nine years old, happy tears are more than just a bit confusing.  An oxymoron in its truest form.

So overjoyed with emotion, my response was one that only muddied the waters more.

For this child I prayed.

The scrunched up nose and tangled eyebrows told me everything. She still didn’t understand.

Remember when we had the cancer game at sister’s basketball. 

Quietly, a yes came forth.

Do you remember whom sister chose to play for?

basketball shoes

Another quiet acknowledgment.

Not that long ago, she was very sick and she was fighting to get better.  When she was so sick, mommy prayed.

I didn’t tell her how for years after the bus crash, I suffered from night terrors.  In those dark moments where silence clung in every crevice of the room, my nights were filled with every worst case scenario my terror-filled imagination could create.  The horror of the immediate and the fear of what more could happen to our family, to my children, were my only thoughts.  I was weary and tired.  Anguish replaced peace-filled slumber.  To drown out the silence, I created noise in my night time routine, until sleep would finally overtake my thoughts.  When we heard about this sweet girl’s diagnosis, my heart hurt for her family because I understood what it felt like to have a child hurt and suffering.  We pray we hear of those hurting universally, but in this case, the hurt came knocking at our door . . . because she was one of “our own”.   As a friend of my children, I am a tiny part of her village.

Rather than allowing my fears to consume me, I changed my night-time routine.  Instead of filling my head with noise, I chose to flood heaven’s gates with prayers.  Whenever I could not sleep, I prayed for her.  While she lay (hopefully) sleeping and fighting the cancer in her body, I prayed for just that – rest for her body, healing for her cells, and peace for her family.  My own nights began to get better, as God and I settled into a routine.  Fitful nights became less frequent for me, but when they did happen, I happily chose to pray for her.  It brought me peace.

In my edited version, I explained to my little girl that even though she wasn’t part of our family, I had spent many, many hours praying for God to heal her.  God doesn’t always answer those prayers in the way we want, but this time, he did.

The joy in her face was priceless . . . “Oh, I get it.  You are crying because you are so happy for her and her team.”

Today, a girl I know, the one for whom I prayed, has a ticket to the dance – the state championship.  Replacing glass slippers with basketball hi-tops, she along with the rest of her team will once again play, with heart and perseverance, hoping to come back as the victors.

What she doesn’t know is someone in the village has been praying for a Cinderella finish . . . for a very long time.

Everyone needs a corner station

Today marks the end of an era in my neighborhood, and I am not happy about it.  We have lived in this town for a little under seventeen years, and this has been my gas station all through that time.  Len’s Southside has been the place where I began to go out of necessity.  Who wants to pump gas in the middle of one of the worst winters on record with a precocious toddler on her hip while being 8 months pregnant?  I know of no woman who would say yes to that scenario.

Convenience. I admit it.  My “relationship” with the father and son dynamic duo began as a mutually beneficial one.  I needed gas, and they needed customers.  Over the years however that relationship changed.  It really had very little to do on my part (or the other beloved customers’ parts either).  It was the way these gentle men put service into service station.

When you came to the corner of Greeley and West College Drive, you came home.  Everyone was treated that way.  The last full service station in our town was the place to come to fill more than just your tank. Over the years, we have swapped fishing and hunting tales.  It is Minnesota after all; so, of course, we talked about the weather.  We have chatted about school, sports, and pigeons.  The elder was so excited to learn that we raise them; because back in the day, he did too.

On more than one occasion, my husband has accused me of frequenting the station because I like to “flirt” with older men.   But as he watched our “relationship” evolve, he began to refer to Len and Jeff as my dad and brother.  No one chuckled more than my sweetie when I came home after buying a scooter and told of how my “family” at the station had chided me at least seven times “to just be careful on that thing”.

Of course, the brotherly and fatherly “interference” didn’t stop there because I do have a tendency to push ‘er to the limit on remembering to fill up.  More than once I coasted in on fumes, guided along by angels’ wings and several prayers – mine.  Len would always just smile the knowing smile, and Jeff would slip in a “Well you sure went a little far this time”.

When tragedy struck both families in different ways, our bond was forever solidified.  We prayed for each other through the loss of a son and mother battling (and winning) with cancer.  Hearing updates on her progress often brought me to tears, as I can only imagine watching my heart break did to theirs.

Gardening was another love we shared.  When “Mom” wasn’t able to tend a garden during treatments, I would send my kiddos on a cycling mission to pedal the bounty from our garden down to the station.  Today the last day of the shop being open, I couldn’t help myself;  I just had to bring them a basket of love.

Two of the finest gentlemen you will ever meet!

Two of the finest gentlemen you will ever meet!

I filled up my old van yesterday because, honestly, I am not the only one who will miss them, and I was afraid that they might run out of gas before today.  There was a beautiful sign up in front thanking the family for 44 years of service.  My littlest and I enjoyed cookies and lemonade on a sweltering day.  She enjoyed the treats, while I reminisced about all the memories we have shared.

When they showed me the proclamation, from the mayor, which was ceremoniously bestowed  earlier that morning, I started to cry.  Tears of sadness – for the loss of tradition of serving others that truly made a mom and pop gas station a place of refuge.  Tears of joy – for living in a town that took the time to recognize two of the sweetest men you could ever meet.  Tears of pride – for two men who just feel like family, knowing in my heart that gentlemen like that are treasures indeed!

Good luck on your next adventure! You will be missed!