Tag Archives: donate life

Thinking about Sunday

When I was a little girl the church we attended had recently built a new and bigger sanctuary and chapel and created a “campus” by building a large gymnasium and classroom building. Unlike the modern trend of bulldozing the old church and Sunday school classrooms, the wise souls in leadership at Hilton Terrace Baptist kept those buildings intact, creating a place for Children’s Church on Sunday mornings and a large area for the women’s quilting group to keep frames up year-round. Going to the BIG church was a BIG deal. Usually the only times children were present was for special performances, the less attended evening church, or Vacation Bible School, otherwise we were in our own church just up the hill a small piece. I really lived an insulated life because that church was not only our house of worship, but also served as our version of the YMCA because the leaders were forward thinking, putting in a skating rink in the gym and placing an emphasis on children and families. Of all the days of the week we were there, Wednesday evenings were my favorite. This was the time when it felt like I had the biggest family in the world as we all gathered on that same gym floor to eat together –like clockwork every week.

photo captured by Microsoft maps

photo captured by Microsoft maps

I don’t remember exactly how old I was when this happened, but I remember how grown up I felt when a tiny little box arrived for me. The box contained an assortment of envelopes, mostly white but a few of assorted colors thrown in too. Sometimes I refer to my childhood church as “old church”, and these offering envelopes were an old church experience for me. I was so proud to be a “regular” that had my own way of contributing to the place that I loved. In my youthful way of thinking, it never crossed my mind that I was a “donor”. I doubt I even knew what that word meant as I stuck a few coins here or there in my various envelopes and marched them right on into Children’s Church each week.

Yesterday sitting in a grown-up church over a thousand miles away from that childhood one, I was thinking about the significance of the day on the calendar when my mind did a play on words. For most, the day was a typical day of worship, just two Sundays before Thanksgiving, but for others it is a day to have real conversations about another kind of donor: those who chose to donate their organs and tissues. It is not an easy conversation, and one that my tiny little Georgia peach self would have never imagined she would be thinking about years later. But think I did!

Many know the story of choosing in our darkest hour to ask if Reed could be a donor, honoring a promise made to a nine-year old child was also something my childhood dreams of motherhood never imagined. But we made the decision to give the biggest gift we would ever give – our son. We chose donation because the then twelve-year old Reed would have wanted us to do so. Of all the decisions we made the night of the school bus crash that changed our lives forever, that was one that made the most sense and one which has always brought us peace.

My childhood coin-filled envelopes probably made a small impact on our church and God’s kingdom, but choosing for our child to become a donor was one that would be life-changing for many. Making that decision did not negate or lessen our grief by one second, but through our pain we provided others joy. And if there was anything, other than his incredible faith, our boy would ever want to be known for, his love for giving to others was it.

The next days and weeks were filled with hospital stays and countless hours at doctor’s and therapist’s offices. Three months later, while our family was literally split in two, Super S and I living four hours away at a rehabilitative hospital, and the girls and Daniel back home, we were all together at the hospital for Mother’s Day. Second only to the year we lost our first baby; this was going to go down as the worst Mother’s Day in history. Reeling from the pain of not having our firstborn, but wanting to spend time with the three beautiful blessings we were still parenting, I experienced one of the most agonizing roller coaster rides of my life. Back then, the days were bad, but the nights – oh the nights – were horrible, filled with pain and night-terrors. Hospitals are not spas and I was exhausted. Everyone was having a great time in the hospital and I asked if it would be okay to just take a break, knowing full well I wanted to find a place to release from my eyes what my heart was feeling. Instead of going on a walk, I retreated to the back seat of our mini-van parked in the basement parking garage of the St. Mary’s hospital with plans to cry my little heart out and perhaps take a nap. My focus was singular. Nothing else mattered but a good crying session and rest from what was the most difficult season I had ever faced in my life. As I approached the cold, cemented structure, I noticed the lack of cars in the garage. It was Sunday – Mother’s Day – after all. The rest of the world was out eating, going to church, planting flowers, and enjoying the sunshine. As I approached our vehicle, I realized the only other one in the entire place was parked right next to ours. So much for a retreat! I was beyond caring – as in DID. NOT. GIVE. A. HOOT – if the owner of that full-sized van came back and found me sleeping in mine. Maybe it was the proximity of the two automobiles or maybe it was something much more divine (because I never saw that van again), my eyes were drawn to its bumper sticker.

Donate your organs . . . because heaven doesn’t need them.

The theology may not be sound, but at that moment, I didn’t care. The flood of grief came pouring out. The anguish of not having my son on Mother’s Day felt as if some cosmic force was ripping my own heart out of my body. Yet mixed in with my electrifyingly burning heart was the joy of all the bumper stickers in the world, God chose to place that one in my line of sight. I cried tears of joy for a God-sighting and for the families who were the recipients of our donor.

And yes, I took that nap . . .

resting peacefully knowing the God of my childhood was still faithful to the little girl who grew up to raise a superhero.

SD700 IS 050-1

To learn more about organ and tissue donation (and becoming a superhero): please visit this website.

Her first words

We have a joke in our family that one of our children bucked the normal speech patterns of development. Instead of the typical da-da-da-da (which of course brought great delight to my sweetie), this little tyke’s first word was “ball”. He didn’t talk for quite some time, but when he did, the first word he uttered was “baw” which he followed with whipping a Nerf one the whole length of the family room. His message was clear! Even today, the messages sent by my children often stir my soul.

Back in May, our Sister had to have major surgery for her knee which was injured further in the basketball season. Although we should be well equipped in how to handle surgeries (this being number 34 for our children since 2008) and in some ways we are, our whole demeanor that day was one of somber. Our hearts sang melancholy. Joined by our pastor (who travelled three hours to be with us), Daniel, Sister and I gathered pre-surgery to pray as we prepared for the time that for me is like a living hell because once upon a time in a surgical post-operative meeting room I was officially told my son was dead. I hate those stupid, clinical, sterile, devoid-of-life rooms. I often beg the doctors to just tell us the news in the waiting room because at least that is a little more welcoming and comforting.

My heart ached when we received the call from the operating room telling us that our sweet girl would need the greater of the two options (complete ACL reconstruction with donated tissue) to repair the damage. Instead of forty minutes, we were told to strap in for a four hour surgery. How would we tell her that most of what she loved was going to have to be put on hold for a year? How much more would she have to endure? Our entourage of three grabbed a bite to eat, visited, and prayed. Because we had left our home at three in the morning, we were offered a private waiting room so that I could nap while we waited. I sat watching old episodes of Reed’s favorite, The Andy Griffith Show, thinking I would never be able to rest, but the mental anguish and physical exhaustion won because the next thing I knew we were meeting with the surgeon.

When we were finally able to all gather together in her recuperating room, I tried my hardest to put on my bravest face. After a little bit of time, I asked if the doctor or nurses had told her any news. In her grogginess, she had enough wherewithal to be able to read the clock. The tables turned when my not-so-little girl tried to comfort me, “Momma, it’s okay. I saw the clock. I know. I know.” No tears fell from her eyes as I fought to hold mine in. There was no steely strength that could have stopped my floodgates from opening after her next utterance. “Mom, I would like to write to my donor’s family to tell them ‘Thank You’.” Here she lay still under the effects of anesthesia, nauseous and unable to walk, and the first thing she wanted to do was to thank someone. Instead of shedding tears on what wouldn’t be (for her specifically: no basketball), she wanted to give back to a family of a person who gave the ultimate gift: an improved quality of life for her. As the sister of a donor, she was firm in her commitment to acknowledge and honor the gift she received.

It took us a little bit (logistically) to secure the information needed for her to do this, but we are now in the process of getting that letter to the tissue organization that will ultimately deliver the letter to her donor’s family. As a donor family ourselves, we hope her small gesture will bring them comfort. In addition to her sincere thanks, she will share that her ultimate goal is to return to playing sports, something not possible without their generosity, and along the way on her healing journey, she will take a stop as member of the Team MN-DAK delegation to the National Transplant Games in Cleveland, Ohio next summer.

I don’t know that she will ever interact with the donor’s family, but I do know that for the rest of her life, she will carry a little piece of their loved one in her knee, but more importantly in her heart.

Photo done by Inspired Portrait Photography

Photo done by Inspired Portrait Photography

Special Note: Organ and tissue donation is something near and dear to my heart. Our son, Reed, at 9 years old, told us that he wanted to be a donor. Never did I image three short years later I would be honoring his wishes. Giving the gift of life is the one of the most selfless acts of service a person can choose. If you are interested in becoming a donor, please visit www.donatelife.org and make sure to share your wishes with your family. Over the course of the next year, we will be sharing our Sister’s journey to Cleveland, including ways to support the team.

18 years of dreams

baby reedDear Reed –

This has been perhaps the most difficult year since you returned to heaven.  That first year was marked with all the absent firsts of losing someone who was so vibrant and alive – all were heartbreaking and each one seemed to be filled with as much anguish as the one before it.  This year my heart has been consumed with the loss of hopes and dreams for someone who held so much promise.  We made it through high school graduation, but the hole in our hearts wasn’t filled because we know the dreams you had for this world.

I have recently been fighting a long bout with a lingering case of bronchitis, and as such, have had many hours to just sit and think.  At some point during these quiet moments, your upcoming birthday came to mind.  I was filled with reminders of how you came into the world (looking like a little old man) and of each birthday that we were fortunate enough to share with you.  All those wonderful parties and the fun we all had!

In the recesses of memories, I recalled the campaign by the American Cancer Society to celebrate one (and hopefully many) more birthdays.  You might think of all the commercials in the world that one popping into my mind would make me sad.   It didn’t.

Instead, I started thinking about the greatest gift we ever gave . . . you.  You were so young, but you displayed mighty courage and wisdom well beyond nine years old telling us that you heart’s desire was to be an organ donor someday.  Knowing your passion made it much easier to make that decision when we were sucked into a vortex of unimaginable pain.

Because of your gift, many people get to celebrate birthdays this year with a better quality of life.  Some have bones that can run races, heart valves that function better, joints that work with less pain, and others have skin that can feel gentle touches.

All of those tiny moments, sometimes taken for granted, are now experienced by someone who might not have had that chance otherwise.  When I think about it, I have to smile at the dreams you helped to make come true.

My sweet red-headed boy, who loved to dream, lives on by making it possible for others to reach for the stars.  I have to believe that even though they will never know you, that a small piece of them now roots for the underdog, loves to laugh, thinks ice cream for supper is the best, and finds grand adventures at every turn.  (It wouldn’t surprise me if they suddenly had a new found love of Star Wars or superheroes.)

It is amazing how hearts can still function, even when they have been broken.  Mine does.  Even in the darkest moments I know that my longing won’t last forever because my heart belongs in heaven with our Big Daddy.  Knowing that you get to see him (and all the others we love) every day does make mine hurt a little less.

Happy 18th Birthday Reed!

Dreaming today that heaven has an amazing celebration for my boy – and hoping that they serve Blizzards for supper.

Loving you forever! Momma